Patient and Public Involvement and Engagement across 13 NIHR CLAHRCs 

Background 
All recipients of National Institute for Health Research (NIHR) Collaborations for Leadership in Applied Health Research and Care (CLAHRCs) funding provide the NIHR with an annual report detailing the activity and progress made in the previous financial year. Annual reports provide valuable information that allows the NIHR to review performance, enable decision making on future funding requirements, answer Parliamentary Questions, prepare briefings for Ministers, respond to other requests for information, and share information amongst the NIHR Coordinating Centres. 

There is a patient and public involvement and engagement (PPI/E) section in the annual report that requests the following information, in no more than one page: 

Please summarise and report on the following areas: 
  • Progress made in the delivery of your aims and objectives as detailed in your PPIE strategy/ies. 
  • What activities and outcomes are you delivering? 
  • What partnerships and collaborations are you involved in? 
  • What resources are you deploying? 
  • How is monitoring and reviewing of progress linked into the reporting and governance structures of the CLAHRC? 
  • Any significant changes or revisions to your PPIE strategy/ies. 
  • Examples of the impact that your PPIE activities are having. 
  • This could be in individual research projects and / or across research areas and / or in the governance and management structures of the CLAHRC itself. 
  • Please highlight any significant successes or challenges. 
  • Please report on your involvement and engagement strategies separately. 
  • Please also describe how you make patients and the public aware of the research being undertaken within your CLAHRC, and signpost them towards appropriate information about participating in research. 

Each year, the NIHR makes the PPI/E sections of annual reports publicly available. All the reports in this series, both current and previous, can be downloaded from the NIHR website: www.nihr.ac.uk/ccf-ppie-reports 


Patient and Public Involvement and Engagement: NIHR Collaborations for Leadership in Applied Health Research and Care Annual Reports 2016/17

https://www.nihr.ac.uk/about-us/how-we-are-managed/managing-centres/nihr-central-commissioning-facility/PPIE-reports/CLAHRCs_2016-17.pdf

This report briefly summarises the PPI/E activities undertaken by CLAHRCs during 2016/17 in delivery of their PPI/E strategies. Following the submission of annual reports, all the PPI/E sections were compiled in a draft document that was shared with the CLAHRCs.

This provided an opportunity to review and edit content; to add any necessary information about context, to explain abbreviations and acronyms and provide contact and website details. The main aim of making this information publicly available is to support and promote the sharing of knowledge, learning and good practice across the NIHR and beyond.

In addition, this report, along with others in the same series, begins to address Recommendation 9 of the Going the Extra Mile Report which followed a strategic review of public involvement in the NIHR:

Recommendation 9 – Coordination: All NIHR Coordinating Centres and
infrastructure organisations should have a strategy, framework or plan that covers
the promotion and advancement of public involvement, participation and
engagement in research. Leadership, accountability and funding for this agenda
within organisations must be clear and transparent. Progress should be reported
annually, made publicly available and an overview included in the NIHR’s annual
report. ‘Going the extra mile’: Improving the nation’s health and wellbeing through public involvement in research’ (2015)

We believe this working document will be of interest and practical use to a number of different audiences including: all those who have responsibility for developing and delivering PPI/E strategies across the NIHR, the public, patients, service users and carers, researchers, research funders, all NHS organisations, Public Health England, industry and third sector organisations.


The NIHR CLAHRC Yorkshire and Humber section of the report is on page 28 and this is our introduction:

Yorkshire and Humber has a long tradition of public involvement (PPI) in research. In
2016/2017 there is a wide spectrum of successful PPI at project and Theme levels. In
particular, our focus on cohorts and participatory research methods represent the diverse, flexible, and multifaceted approaches embodied in our Co-production principle, and it is evident that our research teams highly value the public's knowledge and their contributions to research. We have recruited a total of 25,344 participants into our research projects.

Find out more about NIHR CLAHRC Yorkshire and Humber PPI information on our website: http://clahrc-yh.nihr.ac.uk/ppi