HEOM News and Events





2nd National CLAHRC  Patient Reported Outcomes Measures (PROMs) Research Conference, held in Oxford on the 8th of June at St Anne's College.

Organisers: Background: In the UK there are many PROMs events, however until last year there were no national researcher-led activities on methodologies around development, testing and use of PROMs in different contexts and settings. Following the success of the inaugural national PROMS research conference (June 2016) hosted by Professor John Brazier, YH CLAHRC University of Sheffield, the 2nd conference was organised.

Organisers

The event was organised by a scientific committee comprised of: 

Professor John Brazier (ScHARR and NIHR CLAHRC Yorkshire and Humber theme lead); 

Professor Ray Fitzpatrick (Theme Lead, CLAHRC Oxford and Nuffield Department of Population Health), 

Elizabeth Gibbons, and Caroline Potter (Nuffield Department of Population Health, Oxford and NIHR CLAHRC Oxford); 

Professor Jose M Valderas, (Exeter and NIHR CLAHRC Peninsula).

The role of CLAHRCs was prominently displayed both in advance publicity and on the day. It was made clear that it was an NIHR CLAHRC event. The following six CLAHRCs provided crucial funding and support: Oxford, Yorkshire and Humber, South West Peninsula, East of England, West and West Midlands. It was also endorsed by the International Society of Quality of Life.

The format for the event was of parallel sessions with presentations in the morning followed by a more substantive session in the afternoon with two plenary presentations on Using Patient Reported Outcome Measures (PROMs) in cancer care, Professor Galina Velikova and The National Institutes of Health Patient-Reported Outcomes Measurement Information System (PROMIS): a view from the UK, Professor Jose M Valderas.

There was time for Q&As about each presentation and a concluding discussion on the direction of PROMs research, Professor Ray Fitzpatrick. Seventy-seven abstracts were submitted for consideration and from these, n=36 oral presentations and 39 poster presentations were selected. Twenty-five PhD students presented their work (n=9 oral, n=16 poster). Programme attached.

Twelve reviewers volunteered to peer review and score abstracts and chair a parallel session; most representing the supporting CLAHRCs.

143 registrations were received, including 20 free PhD places. The attendees principally were researchers and clinicians leading and involved in all aspects of PROMs research. Other delegates were represented from industry, pharma and research consultancy organisations.

The journal Health and Quality of Life Outcomes, Biomed Central will be publishing the 38 abstracts from the conference with open access at no cost. This is expected to be published this month (October 2017).

Next steps: It is clear that there continues to be firm commitment from delegates supporting a future event. 

Professor Melanie Calvert, University of Birmingham, a key PROMs researcher in the UK and internationally recognised, has agreed to host the event in June 2018. We will be seeking support from the CLAHRCs again in order to keep fees down, particularly for PhD students ensure the NHS focus of the event.

This information was taken from a blog post from Elizabeth Gibbons, you can see the full post here

Click here to find out more about CLAHRC Oxfords PROMS research.




Reqol Westminster launch event 12th October 2016

A NEW MEASURE TO IMPROVE THE LIFE OF MENTAL HEALTH SERVICE USERS 

Recovering Quality of Life (ReQoL) was launched by Paul Blomfield MP at an event at Westminster in October and attended by representatives from many mental health trusts across the country and various stakeholders.

ReQoL is a Patient Reported Outcome Measure (PROM) that has been developed by a team at the University of Sheffield’s School of Health and Related Research (ScHARR) to assess the quality of life for those experiencing mental health conditions.

The questionnaire will be used in helping to decide what support or services people receive and also to measure and improve the quality of care that service users receive.

Researchers from ScHARR worked together with service users and clinicians to generate the themes, items and scoring of the measure.


Professor John Brazier (pictured left with Paul Blomfield MP) from ScHARR who led the team, said: “The ReQoL-10 and the ReQoL-20 are short measures of self-assessment of quality of life that have been developed rigorously to meet the need for people recovering from a wide variety of mental health problems.

ReQoL provides a unique opportunity to take a holistic view of the lives of service users and hence they can be better supported in their recovery journey.”

ReQoL has been commissioned and funded by the Department of Health Policy Research Programme in England for use in the NHS. It has also been supported by the NIHR CLAHRC Yorkshire and Humber.

The team has worked with the specialist Clinical Outcomes team at Oxford University Innovation Ltd to make ReQoL available. It is free to all publicly funded health services.

Paul Blomfield MP said: “Mental health was one of the most commonly raised concerns in my annual community consultation. When one in four people face a mental health condition, cutting-edge research to improve outcomes are vitally important. The University of Sheffield’s School of Health and Related Research (ScHARR) are making a significant contribution to better mental health through their new Recovering Quality of Life measure. I’m delighted to host the launch of this initiative in Parliament.”



PROMS Conference Sheffield - 9 June 2016

Advances in Patient Reported Outcomes Research and their application to decision making.
The 2016 UK Patient Reported Outcome Measures (PROMs) research conference took place on 9 June in Sheffield (#PROMsconf2016). Over 120 participants took part, attending 24 parallel sessions and one poster session of which over 40 posters were displayed. The afternoon was chaired by Professor Ray Fitzpatrick focused on three plenaries with invited speakers and nominated discussants:
  • Computerized adaptive testing. Professor Tim Croudace, Dundee (discussant; Dr Chris Gibbons, Cambridge);
  • Feedback on PROMs to healthcare providers. Associate Professor Joanne Greenhalgh (discussant: Prof John Browne, Cork);
  • Wellbeing. Professor John Brazier, Sheffield (discussant: Colin Green, Exeter).
PROMS Conference 2016

The conference was co-hosted by Professor John Brazier, Sheffield; Elizabeth Gibbons, Oxford; Professor Jose M Valderas, Exeter; and Dr Georgina Jones, Sheffield. Further administrative support was provided by Jenny Dunn, Theme Manager and Samantha-Jane Pye. Support was granted by NIHR CLAHRCs Peninsula, Yorkshire and Humber, Oxford, and East of England and endorsed by ISOQOL.

Feedback informally and formally was positive; the content relevant and interesting and there was considerable enthusiasm for a similar event in 2017. 




The abstracts have now been published in the special supplement “Proceedings of Patient Reported Outcome Measure’s (PROMs) Conference Sheffield 2016: advances in patient reported outcomes research”. The full content of the supplement can be found at https://hqlo.biomedcentral.com/articles/supplements/volume-14-supplement-1