Going beyond health related quality of life - towards a broader QALY measure for use across sectors

The aim of this project is to develop a broad generic measure of quality of life that is valued on the zero to one scale necessary to calculate Quality Adjusted Life Years (QALYs) for use in economic evaluation. Three key distinctions between existing generic health and wellbeing measures and this new instrument are: the need to be applicable across a number of sectors (health, social care, carers, and public health); the explicit role of broader wellbeing aspects within the instrument; and its intended use in economic evaluation.

The project contains six stages:

Stage 1: Establishing the domains for the QoL instrument 
Identifying the domains for the instrument will draw from a number of strands of qualitative and quantitative work.
Stage 2: Generate a list of potential items
Stage 3: Test the face validity of candidate items
Stage 4: Psychometric testing of items
A large survey will be conducted to generate data for psychometric testing of the final item pool from Stage 3 (30-40 items). This will identify the final items for inclusion in the classification system to be valued. We will survey five groups to achieve an overall sample of 2,000 and ensure we cover all the groups of interest.
Stage 5: Valuation 
The valuation of the instrument involves two components. A large TTO valuation exercise with a representative sample of the general public and a deliberative exercise with members of NICE Citizens Council to generate an alternative valuation and better understand the results of the TTO.
Stage 6: Implementation, dissemination, and impact