SMART COPD - Project Update June 2015
We have developed an app to help people with COPD increase their physical activity! This was based on feedback from Phase One interviews, which showed that physical activity is the most important self-management strategy in COPD. The app is undergoing usability testing with a small group of COPD patients, and preparations are underway for a larger feasibility study of use of the app within Pulmonary Rehabilitation.
COPD Pilot RCT - Project Update June 2015
The results of the pilot trial have been published! www.trialsjournal.com/content/15/1/313
Telecare Barriers Project Update June 2015
Some of the results of the study have been published! http://eprints.whiterose.ac.uk/84696/
The second paper from the project is underway.
Expanded Newborn Screening Impact
The UK National Screening Committee was able to recommend extending the programme to screen for the additional conditions following the results of a pilot programme, coordinated by Sheffield Children’s NHS Foundation Trust, in partnership with the South Yorkshire Collaboration for Leadership in Applied Health Research and Care. Pilot areas included: Sheffield, Manchester, Leeds, Birmingham and London (Guy’s and St Thomas’ NHS Foundation Trust and Great Ormond Street Hospital).
ADHD Health Tracker - Project Update May 2013
We are currently using Health Tracker® with 18 clinicians, 60+ patients, their parents and teachers across Paediatric Neurodisability & CAMHS services in Sheffield. This is enabling patients (as young as five), parents and teachers to complete questionnaires anywhere that has internet access. Patients and parents are reporting the ease of which the scales are accessible and the enjoyment the children have in completing animated questionnaires. Clinicians are reporting the benefits of having numerous scales completed before consultations which importantly, provide a current clinical picture. They are also reporting the benefits of displaying the data to parents alongside interventions. For example, it is possible to show changes in symptom profiling alongside medication.
SMART2 - Project Update
Most Recently Updated March 2012
To evaluate the final PSMS prototypes we use Realist Evaluation methodology. Focus groups were conducted with CHF, Pain and Stroke professionals to search their knowledge, experiences and stories. The focus group data were analysed and the findings were used to examine "what is about the SMART PSMS which seems to have the most impact in changing users‚ behaviour and what type of users are more likely to use the system?"
In Phase One of the evaluation, Heart Failure Specialist Nurses confirmed, refined and further developed the Context, Mechanism, Outcome (CMO) configurations specific to the Congestive Heart Failure (CHF) PSMS. Phase Two involved the deployment of the PSMS prototype with five participants in their own homes over a four week period. Following this, a semi structured interview was conducted with each participant using a schedule developed around the proposed Mechanisms activated by the PSMS. This explored topic areas relating to the conjectured CMO configurations. Despite a number of technological problems, analysis revealed that participants were willing to accept such a system and would be motivated to use it to self manage their condition. The system is currently undergoing some technical adjustments and a further five deployments are planned over the next two months.
To evaluate the pain PSMS, context-mechanism-outcome (CMO) configurations specific to the pain system and patient group were developed in combination with pain management professionals. All ten pain systems have now been deployed within patients‚ homes. Three patients have completed the trial and the remaining seven patients are at different stages of the five week trial. The data from the trial are now being used to verify and modify the CMO configurations and to develop new CMO configurations. Measures and methods employed to evaluate the pain PSMS are consistent with those being used within the CHF and stroke prototypes. This parallelism will support the identification of similarities and differences across the three systems and patient groups.
The development of the stroke prototype in relation to Insole shoe and mobile device is being carried out at the University of Ulster.
SMART3 - Project Update
Most Recently Updated April 2013
Interviews are taking place with people who have COPD and with staff members who treat COPD. The purpose of these interviews is to identify and prioritise COPD self-management targets which could be addressed by the system, and to find out what features potential users of the system think would be beneficial for self management.
We expect to finish data collection by end April 2013.
Developing Evidence for Adoption of a Promising Tele-monitoring Intervention
Project Update - Most Recently Updated February 2012
A systematic review of the literature on randomised controls trials on near equivalent devices (i.e. portable devices that involve tele-monitoring and clinical input) to support weight loss has been written (currently being revised). This has revealed slightly better than moderate evidence for clinically beneficial weight loss (and in one case, reduced average blood glucose levels as well.) Simon Heller, Professor of Clinical Diabetes, after seeing the published results with clinically beneficial reduction of average blood glucose, has supported the idea to move to conducting a UK trial using for comparison the standard care (known as DESMOND). CLAHRC SY Diabetes theme have now joined the project team.
Funding has been sought to culturally translate the intervention to the UK. If successful, this will mean that language, dietary norms, service adoption issues and patient conformance to use of the device and data entry, will all be studied.