ADHD Health Tracker

Tracking Attention Deficit Hyperactivity Disorder (ADHD) Cohort –Sheffield (TrAC-S):

An internet-based system for monitoring ADHD in the community.

Clinical Leads

Dr Val Harpin

Project Lead & Consultant Paediatrician

val.harpin@sch.nhs.uk

Dr Shatha Shibib

Consultant Child and Adolescent Psychiatrist

shatha.shibib@sch.nhs.uk  

Dr Caroline Bleakley

Associate Specialist - Paediatric Neurodisability

caroline.bleakley@sch.nhs.uk

Dr Girish Vaidya

Clinical Director & Consultant Child and Adolescent Psychiatrist

girish.vaidya@sch.nhs.uk

Other Project Staff

Dr Helen Denney

Project Manager (TrAC-S)

helen.denney@sch.nhs.uk

Dr. Jack Parker

Research Fellow at the School of Health and Related Research and Theme Manager for Telehealth and Care Technologies (TaCT)

jack.parker@sheffield.ac.uk

Ian Hayes

CAMHS Information Systems

ian.hayes@sch.nhs.uk

Background
Attention-deficit hyperactivity disorder (ADHD) is a long-term condition affecting 3-5% of school-age children. It is characterised by:

  • Difficulty in maintaining concentration
  • Impulsive behaviour - an inability to resist sudden urges
  • Overactivity

ADHD can have a profound impact on social, academic and family life from childhood to adulthood and is associated with twice the risk of early death.


Management of ADHD involves a complex assessment and treatment process requiring input from multiple sources. Collection of impairment and symptom profiling is vital to the overall success of recommended interventions. This process involves
 difficult and inefficient methods of data collection and often does not include the perspective of children under eleven.  

Aims of TrAC-S

    • To implement the use of HealthTracker® online monitoring system for children/adolescents diagnosed with ADHD, their families, teachers and the health professionals involved in their care in Child & Adolescent Mental Health Services (CAMHS) and Paediatric Neurodisability Services in Sheffield.
    • To develop a research database for routine use and the collection of long-term outcome data on a population-based group of children and young people with ADHD. 

Project summary

HealthTracker® is a secure, online, multi-media, animated suite of questionnaires developed over four years at Great Ormond Street and Guy’s St.Thomas’ NHS Trusts. The system has been designed to enable children, from as young as five, and adolescents with a range of neurodevelopmental and neuropsychiatric disorders to input data through innovative computer-based electronic questionnaires.


The TrAC-S project will use HealthTracker® as a web-based monitoring system specifically designed for children/adolescents diagnosed with ADHD, their families, teachers and health professionals to complete questionnaires online about how the child is getting on at home and school and about any side effects from medication. Families can do this at home using a computer, laptop or tablet and the results will be available to the clinician before their next appointment.

Anticipated outcomes



The TrAC-S project will explore the feasibility of using an innovative approach to monitoring ADHD whilst adhering to NICE guidelines and importantly, gain the perspective of younger service users. The continued use of the HealthTracker® system will allow for further development of the database and establish a research platform with a UK cohort of children/young people with ADHD.

Impact

As the use of Health Tracker™ continues, it will result in the on-going use of an electronic database to capture long-term patient data, such as symptom change and the impact of service interventions. This will enable clinicians to evaluate the effectiveness of service provision over the longer-term and provide a basis for future research projects to monitor the long-term effects of treatments used in the UK.

"This has exciting potential because if successful it could be developed into the first long-term follow-up of the lives of children with ADHD in the UK”.

“Before they go to see the consultant at the clinic, the doctor will already know how the child is doing", said Dr Nevyne Chalhoub, Consultant Child and Adolescent Psychiatrist.

CLAHRC Project Partners

Sheffield Children's Hospital NHS Foundation Trust including:

Child and Adolescent Mental Health Services (CAMHS) and
Paediatric Neurodisability Services (Ryegate)

Other Partner Organisations:

https://www.healthtracker.co.uk/


Resources 


This project has previously been featured in The Star (April 2011) - view the article 
here.