Implementation of an internet based system for monitoring Attention Deficit Hyperactivity Disorder (ADHD) in the community
Attention-deficit hyperactivity disorder (ADHD) is a long-term condition and the symptoms are;
- difficulty in maintaining concentration
- impulsive behaviour caused by an inability to resist sudden urges
This can have a profound impact on the social, academic and family life from childhood to adult life.
Hyperactivity Disorder (ADHD) involves a complex
assessment and treatment process which necessitates multiple
stakeholders to work collaboratively. Indeed, the collection of
impairment and symptom profiling that is carried out is paramount to the
overall success of recommended interventions. This process often
involves difficult and inefficient methods of data collection and often
does not include the perspective of children under eleven.
- To implement the use of Health
Tracker® with children/adolescents diagnosed with ADHD, their families,
their teachers and the Health professionals involved in their care in
CAMHS and Paediatric (Neurodisability) services in Sheffield.
- To develop a database for routine
use and the collection of long-term outcome data on a population based
cohort of children and young people with ADHD.
The Health Tracker® (HT) project aims
to implement the use of a computer database with children/adolescents
diagnosed with ADHD. This includes their families, their teachers and
the health professionals involved in their care in Child and Adolescent
Mental Health (CAMHS) and Paediatric Neurodisability services in
Sheffield. HT is an on-line multi-media (animated) suite of
questionnaires and neuropsychological test games developed over four
years at Great Ormond St and Guy’s St.Thomas NHS Trusts. The system has
been designed to enable children (as young as five) and adolescents
with a range of neurodevelopmental and neuropsychiatric disorders,
parents, and teachers to input data through innovative computer-based
As part of our evidence appraisal we are writing a systematic review; ‘The
long-term outcomes of attention-deficit hyperactivity disorder
interventions: A systematic review of randomised controlled trials.’
This project is will have explored the feasibility
of using an innovative approach to monitoring ADHD whilst adhering to
NICE guidelines and importantly, gaining the perspective of younger
service users. The continued use of HT will also allow for further
development of the database and will establish a research platform with a
UK cohort of children/young people with ADHD.
The long-term use of Health Tracker™ may result in
the on-going use of an electronic database to capture long-term patient
data, such as symptom change and the impact of service interventions.
This will enable clinicians to evaluate the effectiveness of service
provision over the longer-term and provide a basis for future research
projects to monitor the long-term effects of treatments used in the UK.
"This has exciting potential
because if successful it could be developed into the first long term
follow-up of the lives of children with ADHD in the UK," said Dr Nevyne
Chalhoub, consultant child and adolescent psychiatrist at the Trust who
is leading the project with consultant paediatrician Val Harpin.
"Before they go to see the consultant at the clinic, the doctor will already know how the child is doing."
CLAHRC Project Partners
Sheffield Children's Hospital NHS Foundation Trust
Other Partner Organisations
Great Ormond Street Hospital
Child and Adolescent Mental Health Service (CAMHS)
Paediatric Neurodisability Services (Ryegate)
Guys' & St Thomas' NHS Foundation Trust
This project has previously been featured in The Star (April 2011) - view the article here.