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Young people with dementia need new approaches to care

Research conducted by academics at the University of Hertfordshire outlines new approaches to care for people diagnosed with young onset dementia.

There are currently around 42,000 people under the age of 65 living with young onset dementia (YOD) in the UK. Their support needs are different to the care required by older people. However, little is known about what should be put in place to provide age-appropriate care.

In order to understand how services could be improved, academics from the University of Hertfordshire ran discussion groups to explore perceived service priorities with people with (or with experience of) YOD. They also conducted a literature review, focusing on services available for people affected by YOD. Of the 31 discussants, 11 had a diagnosis of YOD and 20 were spousal caregivers. Academics also interviewed representatives of service providers.  Findings of this study were published in Dementia: The International Journal of Social Research.

The research found the best way to improve services for younger people with dementia is for people affected by YOD to work closely with service providers to co-design and co-ordinate support that is locally sustainable.

CAnceR Experience: approaches to capturing patient experience of cancer care

“The experience of cancer care is by definition subjective and efforts to improve the quality of care must
start from patients’ and carers’ own experiences” (NCAT 2010)

2nd June 2018, Hallam Hall, Owen Building, Sheffield Hallam University, City Campus

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Friday the 6th of March 2015
Park Plaza Hotel, Leeds

Aim: Share the range of implementation expertise across NIHR CLAHRC YH with CLAHRC themes, the improvement academy and wider CLAHRC community, also to stimulate the use of implementation approaches in delivering impacts of research teams in and associated to CLAHRC.