Collaborating with Gypsy and Traveller Communities in Yorkshire and Humber
We are currently working on an exciting new project with The York Traveller’s Trustthe Research Design Service (RDS) and the Clinical Research Network (CRN). Together we are developing a community led project with local Gypsy and Traveller Communities. Through this work, we aim to:

  • Start to build trust between community members, researchers, NIHR and other local organisations (e.g. universities).
  • Develop, evaluate and share involvement and engagement methods, which others can apply.
  • Provide a platform for community members to express their views about health and social care.
  • Develop and agree a plan for future collaborative working.
  • Raise the profile of Gypsy and Traveller community organisations within the region.
We are currently in the early stages of the project and will work with community members to develop our plans. The project is likely to culminate in a final event, which will include relevant research teams from across our region. We hope that this event will act as a platform for ongoing projects and relationships.

The project is funded by NIHR INVOLVE, as part of their Reaching Out programme. Through the programme, NIHR hope to create greater community engagement within health and social care research. All the projects focus on parts of the community who are underserved by our current approach to public involvement.

Contact | Delia Muir | 
Information about the other ‘Reaching Out’ projects available at

Public Involvement projects within our Themes: Below you can see the links to each of our Themes and see contact details and summaries of specific projects and groups within those themes which you may like to get involved with. 

Avoidable Attendance and Admissions in Long Term Conditions (AAA)Sheffield Emergency Care Forum

Emergency Care Research – Patient and Public Involvement
Leading, high quality emergency care research must be relevant to the patients and public who are going to benefit from it. Sheffield Emergency Care Forum aims to help researchers and patients through the research process, making participation easier and research accessible to the public. Sheffield Emergency Care Forum (SECF) is a pioneering PPI group representing patients and public within cutting-edge projects, involving multi-site research centres across the U.K. Our lay members come from all walks of life and we welcome members from Yorkshire Ambulance Service and medical students. We aim to represent patients and public alike from across the community.

Contact | Colin A O'Keeffe | 

Evidence Based Transformation with the NHS

Generic Yorkshire Quality and Safety patient panel
This is a mixed group of lay people, we encourage diversity to represent the region, particularly Bradford and Leeds populations. Some members have links to national groups (e.g. Diabetes UK, CQC inspection teams, Healthwatch). We also have a Governor and Chaplain from Bradford Teaching Hospitals. This group are well connected and can signpost the team to other contacts. The Improvement Academy in Bradford also uses them as a resource e.g. as a sounding board for new ideas.

The groups role is to:
  • Support/advise the YQSR team when we are developing and conducting our research, including CLAHRC.  For example: the YQSR team might consult them at an early stage with an embryonic research idea, the group might help the team design and improve leaflets.
  • Some collect data for the team (e.g. on the PRASE project they went out and spoke to patients on wards for us)
  • Some help with dissemination – e.g. presenting findings or have led workshops (e.g. at the Improvement Conference November last year they ran a Q&A workshop on understanding the role of PPI in research).
Partners at Care Transitions (PACT) Patient Advisory Panel
this is a project-specific panel for the PACT Programme Grant.
Specific people were recruited for this panel – all aged 65+ elderly care service users and their partners – and advise/work with the PACT project team (with similar activities to the Generic Yorkshire Quality and Safety patient panel.

Yorkshire Patient Safety Transitional Research Centre
This patient panel is in development, with patient leads for each of the Centre's workstreams.  These members have broader knowledge of healthcare and issues and previous experience of public involvement.  They are also linked with other regional involvement groups so we can tap into these for research.  They have experience of running meetings, and being proactive in the community on researchers’ behalf. 

Contact | Liz Thorp |

BiB parent governors group
BIBBS CRAG (community research advisory group)
Teacher Reference Group
Born in Bradford is helping to unravel the reasons for this ill health and bring new scientific discovery to the world. It is also providing a catalyst for communities to work with the NHS and local authority to improve child health and wellbeing. They welcome and need PPI within their projects. 

Contact| Sally Barber | 

A programme of work is being undertaken between Bradford District Care Trust, the University of York and the University of Leeds, supported by NIHR CLAHRC Yorkshire and Humber, with the aim of improving the healthcare of people with SMI and diabetes. We will be working closely, not only with our own academic team, but with stakeholders and a newly formed Patient and Public Involvement (PPI) group. 

The involvement and engagement of patients and the public in cohorts used as a platform for other studies is complex.   Our aim was to create a structure to enable meaningful, sustainable public involvement within the cmRCT framework. We have established a Frailty Oversight Group (FOG) of four key individuals with extensive links to other relevant local community structures and individuals.  And, are working towards the development of a network of interconnected PPIE structures across time, geographical space and communities of interest, which add value to all of the work within the cohort.

Contact | Lesley Brown |  

It is important to involve members of the public when developing research and when looking to recruit 
research participants. This is because members of the public have valuable perspectives on varying conditions, and on the way people access and understand information. We can learn from these perspectives 
when designing and conducting research. However, the difficulty remains in the timely identification of people 
for a range of research areas and conditions. To help address this difficulty, the Citizen Science Database has been established, which aims to increase the ease by which members of the public can be 
recruited for research participation and for Patient and Public Involvement (PPI) activities. 

The Tact (telehealth and care technologies) Theme of the NIHR CLAHRC YH has worked with a number of individuals and organisations to develop and raise awareness of the database with the aim to continue its 
growth. The database will be a shared resource within the TaCT theme and other related groups.
Find out more on our leaflet here

Contact | Lauren Powell | 

Through the nature of their implementation (evidence into practice) work the TK2A Theme have a number of groups they work with:
  • Diabetes UK (Sheffield branch), 
  • Doncaster Bariatric surgery support group, 
  • Huddersfield University PPI group, 
  • Sheffield Addiction Recovery Research Panel (ShARRP), 
  • Sheffield Dementia Involvement Group (SHINDIG), 
  • Stroke Association (Sheffield) 
  • Breatheasy group Sheffield (with TACT)
Contact | Daniel Wolstenholme |