Health Economics and Management
The HEOM theme is cross cutting over all the CLAHRC themes and will therefore link with relevant patient groups within each theme, to ensure appropriate patient and public involvement e.g., working with patients on PROMs in mental health and child health. This will ensure the outcome measures that are developed and selected are appropriate. We will also work with these groups in order to establish the best ways of collecting PROMS information and frequency for collecting outcomes. The HEOM theme will link with individual work packages that will have PPI involvement at various stages, including representatives on steering groups. We will also consult with patients as regarding resource use collection and quality of life to ensure the information we are collecting is appropriate to them, we will also consult with patients and the public on appropriate questionnaire design. In disseminating research findings we will include patient accessible journals. This will be further aided by targeting open access journals.
Mental Health and Co-Morbidity
DIAMONDS PPI: A questionnaire based on the Diabetes UK patients Experiences was sent to wards, CMH teams, BCHT and all stakeholders. The Findings formed the basis for the PPI launch.
The DIAMONDS PPI launch was held to introduce a proposed area of research in Severe Mental Illness (SMI) and diabetes. In attendance were service users (people with both SMI and diabetes), carers and care providers. There were 16 attendees including 5 people with Diabetes and SMI. The event was a success and good information came from 2 work sessions. Attendees were invited to become involved in the research and expressions of interest forms were given out. It is envisioned that there will be a larger stakeholder group including stakeholders and PPI. A smaller sub-group to engage with the research with the view to recruiting 1 or 2 of the sub-group to be stakeholders in research meetings, part of the DIAMONDS research management group is envisioned.
Bradford District Care Trust (BDCT) is committed to patient and public involvement in research and to inspire patients, carers and the public to be involved in research, now and in the future. The development of this mental health and diabetes research project is part of that commitment. Further information about involvement in research at BDCT can be found in our PPI in Research Strategy. This was developed in collaboration with service user representatives and can be read here
Primary care based management of frailty in older people
We have a Frailty Oversight group (FOG) that comprises community representatives at a strategic level to ensure continuity over five years. The members are drawn from organisations involved in the Bradford Older People’s Partnership e.g Meri Yaadin (BME interest), Positive Minds (mental health interest), HealthWatch and lay members. The remit of this group is to input into the direction of the CARE cohort in terms of range and scope of future studies. It will also facilitate networking with more specialised user groups e.g. care home residents, BME groups and dementia service users and their families if necessary. We have established links with a number of older people’s forums in the Bradford area including the Shipley Older People’s Forum, the Bradford Older People’s Focus Group and the Bradford District Care Trust Older People’s Service User and Care group. We have also networked with the Bradford District CareTrust PPI in Research Action Group. We have also met with representatives of HealthWatch to discuss potential collaboration.
The FOG plays an active role in providing input into the studies and on the associated material like information sheets for participants. In addition, some member of the FOG have accompanied researchers and observed them undertaking assessments. This has provided useful information for researchers as a way of improving the process for participants.
Telehealth and Care Technologies
Special Interest Group (SIG): The theme held a special interest group event where two of the TaCT members attended alongside 25 other TaCT contacts from academia, local authority and industry. The half day event was a series of talks and discussion around pertinent teleheath issues. Three TaCT PPI members took part in a networking and learning event with the Barnsley CRAG around role descriptions and terms of reference.
PPI database for patients & researchers: Lauren Powell a researcher within the NIHR CLAHRC YH Telehealth and Care Technologies (TaCT) Theme is working with the Rehabilitation and Assistive Technology Research and the Centre for Assistive Technology and Connected Healthcare at the University of Sheffield to create a PPI database. The aim of the database is for people to register on the database if they are interested in a number of long term conditions, because they have one, they live with, care for, or support with somebody who does, they have a general interest in the condition. When people register onto the database, you are agreeing to be approached in the future for a number of projects that require either Patient and Public involvement (PPI) activities or will enable you to act as a participant for projects. Lauren will be working to ensure that details aren’t being shared too widely and that patients aren’t contacted too many times If you have any questions about how you can work with the team or if you would like to recruit for research or PI purposes, then please get in touch as the database may be of some use to you.you can contact Lauren Powell – email@example.com or 0114 222 8275